Support HGHS Families
Cassie, born in February 2024 to Rachel and Josh Dutro of Richmond, Virginia, has been diagnosed with Krabbe Disease, a rare and terminal genetic disorder affecting the nervous system. Despite the absence of a cure, treatments are available to manage symptoms and ensure Cassie's comfort. A GoFundMe campaign has been established to assist the Dutro family with medical expenses, travel to specialized clinics, and to provide them the opportunity to cherish their time with Cassie without financial strain.
Your support can make a significant difference in their journey.
Support The Dutro’s
Shepard, a young child, has been diagnosed with hepatoblastoma, a rare liver cancer affecting 1-2 children per million annually. After persistent fevers led to medical consultations, tests revealed a mass in his liver. Shepard has since undergone a liver biopsy, had a port placed, and commenced chemotherapy. A GoFundMe campaign has been launched to assist Shepard's family with mounting medical expenses and to support them during this challenging time.
Contributions will help alleviate financial burdens and allow the family to focus on Shepard's treatment and well-being.
Tim and Sidney Prescott's 7-month-old son, Ronan, has been diagnosed with Krabbe disease, a rare and progressive genetic disorder affecting the nervous system. This condition leads to severe neurological issues, including muscle weakness, seizures, and vision loss, with most affected children not surviving beyond two years of age. The Prescotts are seeking specialized medical care for Ronan, which involves significant travel and mounting medical expenses. A GoFundMe campaign has been established to help alleviate the financial burden, allowing Tim and Sidney to focus on providing Ronan with the love and care he needs during this challenging time.
Hadleigh, the daughter of Lindsey and her family, has been diagnosed with Neuroblastoma MS, a rare pediatric cancer affecting approximately 700 children annually. This diagnosis presents significant emotional and financial challenges, including travel expenses, hospital stays, and time off work. A GoFundMe campaign titled "Hadleigh’s Helping Hands" has been established to support the Thornley family during this difficult time. Contributions will help alleviate financial burdens, allowing the family to focus on Hadleigh's treatment and well-being.
Paxton, diagnosed with an ultra-rare genetic mutation on the CLCN6 gene, faces significant challenges including Autism Spectrum Disorder, severe epilepsy, hypotonia, and poor motor coordination. This neurodegenerative condition necessitates urgent intervention. Given the rarity of his mutation, traditional research avenues are limited, but the University of Massachusetts' Horae Gene Therapy Center offers a promising opportunity to develop a custom gene therapy for Paxton. The comprehensive process, encompassing laboratory studies, therapy development, testing, and administration, is projected to span three years and cost approximately $1.5 million. A GoFundMe campaign has been initiated to raise these critical funds, aiming to provide Paxton with a life-saving treatment and a brighter future.
Support The Purdy’s
Nyomi, the beloved daughter of ReeQuell Corley, was diagnosed on August 19, 2024, with Infantile Krabbe Disease, a rare genetic disorder that affects approximately 1 in 100,000 children. This condition leads to the progressive destruction of the protective coating of nerve cells, resulting in severe neurological decline. In a short period, Nyomi has experienced rapid progression of the disease, leaving her unable to walk, hold objects, or perform basic tasks. Despite these challenges, her joyful spirit continues to shine through. Nyomi is a potential candidate for a stem cell transplant, the only treatment that may slow the disease's progression. To support her medical expenses, specialized equipment, and in-home therapies, a GoFundMe campaign has been established. Contributions will help alleviate the financial burden on her family and provide Nyomi with the best possible care and comfort during this challenging time.