Daily Essentials for Parenting a Child with Severe Disabilities: Our Tried-and-True Favorites
Parenting a child with severe disabilities comes with unique challenges, and finding the right tools and products can make all the difference. These are the items we use every single day to support Cassie, our sweet girl who has severe disabilities due to Krabbe Disease. From chewing aids to adaptive clothing and beyond, these products have not only helped meet her specific needs but have also made our journey as parents just a little smoother.
Important: Always consult your child’s doctor or care team before introducing new products to ensure they’re safe and appropriate for your child’s unique needs.
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Chewing and Oral Sensory Tools
For Cassie, chewing isn’t just a comfort, it’s essential for her oral motor development and sensory engagement. These tools keep her happy and engaged:
Silicone Teething Mitten
Perfect for little hands, this BPA-free mitten lets Cassie chew independently without constantly dropping it.Teething Tubes
These soft, colorful tubes are a daily must-have. When paired with adaptive grip aids, Cassie can enjoy independent chewing time.Infantino Vibrating Apple Teether
This combines Cassie’s favorite sensations: chewing and vibration. We help her activate the vibration, and the smile on her face says it all!Buzz Buddy Oral Motor Stimulation Kit
This vibrating chewing tool is a sensory delight. While the strong vibrations don’t hold her attention for long, they’re a fun addition to her routine.Mushie Silicone Teether
Lightweight and easy to grip, this is another favorite for Cassie’s independent chewing needs.
Feeding and Mealtime Must-Haves
Managing Cassie’s feeding schedule involves precision and efficiency. These products make life easier:
Momcozy Breast Milk Pitcher
Whether we’re mixing formula with Pedialyte or anything needed for your special kiddo, this pitcher is a lifesaver with its clear oz and ml measurements.Boon Lawn Drying Rack
Ideal for drying syringes and bottles, this stylish yet functional rack keeps everything organized.Silicone Dish Drying Mat
Placed under the drying rack, it’s quick-drying, easy to clean, and the perfect companion to the Boon Lawn.Tripp Trapp High Chair
Cassie can’t use traditional high chairs, but this adjustable seating solution lets her sit at the dinner table or by my desk with ease.
Comfort and Rest Essentials
Creating a calming, secure environment is key to Cassie’s comfort. These items are daily staples:
Mr. Sandman Weighted Blanket
Designed to help soothe Cassie during muscle spasms, this blanket is soft, cozy, and supportive. Note: Always consult your doctor before using weighted blankets.Nanit Superior Sleep Set
This all-in-one monitor allows us to review Cassie’s movements at night. Bonus: its “shush” sound feature is magic for calming her during restless moments.
Adaptive Clothing for G-Tube Access
Dressing Cassie in G-tube-friendly clothing makes a huge difference in her comfort and our convenience:
Little Planet Footless Wrap Sleep & Play and BINIDUCKLING Snap-Up Rompers
These soft, button-up outfits offer quick and easy access to Cassie’s G-tube without needing to modify the clothingG-Tube Button Covers
These covers protect Cassie’s tube site from accidental messes and keep her skin safe from irritation.
Sensory and Visual Engagement
Cassie thrives on sensory input, and these tools keep her engaged and happy:
A favorite for visual stimulation, this mobile keeps her captivated with its gentle movements.
This portable arm allows us to move her mobile wherever she’s playing or resting.
Recommended by her OT, this textured pillow provides sensory feedback and keeps her connected to her surroundings.
Cassie loves gazing at the starry ceiling. It’s calming without being overstimulating and a perfect alternative to screen time.
For Parents: A Little Self-Care
Parenting a medically complex child is physically and emotionally demanding. These items help us recharge:
This compassionate book offers validation and comfort on the hardest days. I read this book during the first month after we got Cassie’s diagnosis. Megan has a way with words when the world feels lonely and cold.
After long days of lifting, rocking, and soothing, this heating pad is a simple way to ease sore muscles.
These will help with those undereye bags. IFYKYK.
Final Thoughts
Every day with Cassie brings its own set of challenges and joys, and these products have become indispensable in our daily lives. From sensory tools to adaptive clothing, they help us support her needs while also making our lives as caregivers a little bit easier.
Do you have any favorite products that make life smoother for your family? Share them in the comments, or pass this post along to another parent who might find it helpful!
Let’s keep the conversation going, because together, we can make this journey just a little easier.
